Vitiligo

A love letter...

Dear Vitiligo,

You rocked my world when you first came into my life- 13 years ago.
You were my 9/11.
My Tsunami.

I tried to hide your first few spots
with a Band- Aid.
Imagine!

You were my extra marital affair-
My secret
to be kept hidden from family and friends.

You filled my thoughts, my hours and my days.
I could think of nothing else.
You consumed me.

Your passion was brutal- you drained me
and robbed me of my melanin
pigment by pigment- I was putty in your hands.

You seduced me
with treatment options
Steroid creams, Ayurveda, Chinese herbs, PUVA and NB-UVB.

Your kisses left spotted evidence
on my neck, my cheeks, my hands, my eyes
which I tried to cover up-

with Turtle necks
long sleeved tops
and fancy sunglasses.

Oh! Mrs. Jain..."your colourful tights are so in".
And those scarves-
Camouflage!

Little do they know-
I'm keeping you all to myself
You are my secret lover- I'll bear your bruises in private.

You took me to the dark side
I clawed my way back
Bring it on you bastard - I am ready to break free.

The doctor said,
"Consider yourself lucky-
It's not cancer."

The husband said,
"I bagged a great deal-
 A BOGOF- married a brown girl, got a white one for free- Yipee!"

I quit the doctor
and
kissed the husband.

You are a part of me and always will be
A topsy- turvy fantasy
a threesome- you, me and hubby.

Love

Arti
xoxo



All the hullabaloo caused by the new Miss America made me think about pigmentation and hence my letter above. I have lived with Vitiligo for thirteen odd years and see myself as 'a-patchy-Indian' (Apache Indian) :)
I enjoyed reading this article:
http://www.thedailybeast.com/articles/2013/09/17/miss-america-meet-india-s-dark-side.html


In case you are wondering about Vitiligo ( also known as leucoderma), here's an explanation:

Vitiligo Explained

Whilst vitiligo is a relatively common skin disease, it is little known by the general public and often not well understood by the medical profession. In modern society appearance can be all important.  It is the constant worry of the increasing visible difference that makes vitiligo so extremely difficult to live with.  It is for this reason that sufferers can find it hard to adjust to their changing appearance; It can even raise questions of cultural identity when darker skinned people may have to face the prospect of a future with white skin.
and a BOGOF is- buy one get one free.


35 comments:

  1. It must be really hard! ... but you are brave and have the right attitude... Kudos to you for handling it so well...

    ReplyDelete
    Replies
    1. Thank you Ish. It wasn't easy. It has taken me almost 15 years to come to terms with this and even now there are days when I wonder- 'why me?' But my friends and family have been wonderful. They have helped me to see that a beautiful heart is more useful than a beautiful body:) xx

      Delete
  2. Hi Arti,
    I am Vidya Shenoy's friend, who upon her recommendation happened to read this write up. What a beautiful write up indeed! I really admire your courage and attitude towards life.
    Keep inspiring.....
    Regards
    Rupa

    ReplyDelete
  3. Salutes to u my dear! U r my living example of looking at brighter side of life! More power to u and cheers to life!

    ReplyDelete
    Replies
    1. You said it Vidya- Cheers to LIFE! And blessed are we who have opened our eyes today to see the sun and hopefully the Full Moon later tonight:) love and hugs. xx

      Delete
  4. I read with dual interest...one being the way in which you have tackled Vitiligo...the other, your wonderful command over the language...then I shared this Post with a close friend who has tackled the onslaught of Vitiligo herself with a very similar approach! Am glad that Ketaki shared your Blog on Google...I look forward to being a regular reader and glancing through the lovely pictures...hoping that I shall restart my blogs/writings with renewed vigour...

    ReplyDelete
    Replies
    1. Thank you Ruchira and welcome to my little corner in blogosphere.Vitiligo had started definining me till I tackled it and took charge. It's easy to play the victim, but so boring! Give my best to your friend:)
      Looking forward to reading your posts:)

      Delete
  5. This is a beautifully written piece Arti...I can relate to this as my mother got it a few years back and I can see how it has affected her personality...she does not like to meet new people....she has it on her face and arms so she cant hide it. Love the positive note in your piece. Shows your inner strength.

    ReplyDelete
    Replies
    1. Hi Alpana. It's not easy to watch your pigment disappear. The feelings of 'Why me?' and helplessness can be difficult to cope with. And the stigma in India surrounding Vitiligo doesn't help either. I used to use camouflage make up when it first started. It certainly boosted my confidence in those early days. I will send you some details.

      Delete
  6. This was really inspirational to hear. I have been suffering from vitiligo for a couple of years, 7 to say the least. It has de-moralised me in so many ways possible, it ruined my social life and so much other more. I was born and raised in India, my parents often believed in the traditional medicine often made specifically in India, I reckon It was called ayurveda or homeopathy, can't exactly remember. Although none of that really helped me, I have used over 5 to 6 different treatments but none of them ever had an effect. I moved to kenya when I was around 18 years old, visited a few doctors here and there, all to no result. 4 years later, just as soon as I was losing hope, I did find one therapy which has been highly effective and it cured almost all the white spots on my face which really rebuilt my morale. If anyone is interested in knowing more, You can email me At naveenkumar4090@gmail.com :) I hope I can help a couple a people.

    ReplyDelete
  7. To get the perfect white patched treatment with permanent results you need to set your appointment with the Mohan Skin Centre. We are the leading clinic that gives you perfect Vitiligo treatment in India without making any extra money from you.

    ReplyDelete
  8. Anti vitiligo herbal oil is natural organics base formula for permanent vitiligo spots recovery without any side effects .it is most effective organics remedy for all type of skin like sensitive dry oily and both gender can apply.

    ReplyDelete
  9. Vitiligo Skin problem is curable by treating it with 100% herbal product. Anti Vitiligo Kit.

    ReplyDelete
  10. Nice!
    Your blog is completely amazing and get more help.
    As we you know that everyone search best treatment place but do not find it.
    I suggest best treatment place for you. Visit here:
    Vitiligo Treatment in Delhi

    ReplyDelete
  11. Try Vitiligo Natural products for complete recovery of vitiligo skin disease. Because natural products are made with natural ingredients which works without any side effects.

    ReplyDelete
  12. Nice Blog!
    If anyone is suffering from sever vitiligo or white patches then vitiligo treatment cream is the best option for you. Just visit our website and get the detailed information on vitiligo.
    Responder

    ReplyDelete
  13. Thanks a lot!
    Amazing content posting here, that is so unique information.
    Looking Doctors for
    vitiligo treatment in Delhi
    nearby your locality and get doctors contact addresses, help-line number.

    ReplyDelete
  14. Vitiligo is an auto immune disorder that causes loss of melanin pigment in skin resulting into uneven white patches. It is a progressive disorder in which the pigment cells of skin get damaged, lose their functional ability of melanin formation and also fail to transfer the melanin content from basal layer of skin to the upper layer which results in vitiligenous patches. Vitiligo problem can only be controlled and never cured completely.

    Vitiligo Cream - Herbal cream for vitiligo treatment
    Increases skin pigmentation.
    Offers sun protection.
    Improves tyrosinase activity.
    Indications.
    Vitiligo and hypopigmentary disorders.
    https://www.jrkresearch.com/tolenorm-ointment.php

    ReplyDelete
  15. If Anyone can searching Skin Specialist Doctor in Chandigarh Then You Can Visit Our Website and click to Book-An-Appointment and Meet With Doctor, Or You Can Call Our Helpline No.
    Phone Number :- +91 9780981403

    ReplyDelete
  16. Thank You for providing the use-full information.

    If Anyone can searching Skin Specialist in Delhi Then You Can Visit Our Website and click to Book-An-Appointment and Meet With Doctor, Or You Can Call Our Helpline No.
    Phone Number :- +91 9811144680

    ReplyDelete
  17. i want to inform the public how i was cured from (HERPES

    SIMPLEX VIRUS) by Dr ABO,i visited different hospital but

    they gave me list of drugs like Famvir, Zovirax, and Valtrex

    which is very expensive to treat the symptoms and never

    cured me. I was browsing through the Internet searching for

    remedy on herpes and i saw comment of people talking about

    how Dr ABO cured them. when i contacted him he gave me hope

    and send a Herbal medicine to me that i took and it

    seriously worked for me, am a free person now without

    problem, my herpes result came out negative. I pray for you

    Dr ABO, am cured you can also get your self cured my friends

    if you really need Dr ABO help, you can reach him now on

    draboherbalhome@gmail.com or you can whatsApp him on

    +2349051821007

    ReplyDelete
  18. Thanks for providing such a great information

    Looking for general, pediatric or aesthetic dermatological solutions? You can seek advice with the leading Best Skin Specialist in Gurgaon, Dr. Niti Gaur at Aster Dermatology Clinic. She's got 13+ years of experience. She has done MBBS and MD in Dermatology from the premier institutes. Also, she has received extensive training in India and abroad. Find changes in your skin, nail, and hair just in a few days.

    ReplyDelete
  19. Losing skin color in blotches? It's time to have a thorough check-up for vitiligo, a chronic pigmentation skin disorder. Finding Best Clinic for Vitiligo Treatment in Ludhiana? Visit  Dr. Shikha Aggarwal’s Clinic and find an apt solution. Whether heredity or triggering events like sunburn, exposure to industrial chemicals etc. are reasons behind, the doctor uses the best-fit approach to produce the quick and effective result for vitiligo. Hurry up! Book an Appointment today at www.drshikhaaggarwal.com.
    Vitiligo Treatment in Ludhiana

    ReplyDelete
  20. The way you explained your feeling this touched my heart. But I must say you are so brave to handle it. Thanks for sharing this with us. If anyone looking for Vitiligo Ayurvedic Treatment then visit our site.

    ReplyDelete
  21. Thank you for sharing the information. Phulwari(vitiligo) is a skin condition in which the skin losses its pigmentation and develops white patches. Just visit our website to know more about vitiligo treatment. Click the link below for Phulwari Doctor India.

    ReplyDelete
  22. This comment has been removed by the author.

    ReplyDelete
  23. This comment has been removed by the author.

    ReplyDelete
  24. Heart-melting poetry... For vitiligo treatment in India there is Focus hair transplant studio which provides best quality treatment for the same. If you need the details about the doctor click on the link.

    ReplyDelete
  25. I have be dealing with terrible vitiligo over nine years.i continuously taking treatment to clear them. the vitiligo was so embarrass and was so wicked to be clear off. five weeks ago i found possible natural treatment online, i purchased the natural cleanser online after applying it for two weeks all I could found my face was cleared. no more vitiligo.I got ride of my vitiligo with natural herbal cleanser from Dr Oselumen . His email address droselumen@gmail.com whatsapp number +2348054265852.He can cure any of this diseases problems you may need.
    HERPES WARTS,HPV WARTS,DIABETES,LIVER CANCER,ALS,HEPATITIS B,BODY REDUCTION,FIBROID,BREAST OR PENIS ENLARGEMENT,PREGNANCY MISCARRIAGE, AND MANY MORE YOU MAY NEED.

    ReplyDelete

I would love to hear from you. Please leave your thoughts and comments here.